Friday, September 12, 2014

Day 3: Hot and Cold

Well, I don't know about Sarah or Judi, but I slept like a rock last night in the hotel.  One of those sleeps where you don't move for 9hrs straight - man, I needed that.  Let's get this day on the road.  Time to check in at room 830 with Sarah and Mom!

They, however, did not sleep all that great.  Sarah was still off schedule having slept for 13hrs during the day for the surgery, so was awake most the night, which meant Judi was too - no thanks to the cot from hell!

We got some breakfast and just hung around for a bit.  Sarah was pale looking and did not have much energy.  This is the typical 'Day 3', where your body just wants to heal and not do much else.  So Dr. Lang said let her do it.  We also were having some troubles managing pain as Sarah was not letting us know when the pain was getting above, say 2, on the 1-10 scale.  She'd be moaning and wincing, all of the sudden, and she would say the pain is a 5 - uhg!  This makes it harder to get the pain under control, when you let it go unannounced to long.  So she got some stronger 'oxy-stuff', which helped her relax and really got her in a better mood and more mobile.

So, after lunchtime, she was feeling really pretty good.  We took a few short walks, she ate some apples and peanut butter, and some popcorn - so things were looking up.  They also pulled her pacing wire (not so fun, but nothing like the tube), and her last IV from her hand which really stopped working anyway.  So that boosted her mood, getting the last 2 internal attachments removed.

I went for a walk to see the new location of the gift shop and the CVS since all the construction.  This is a great hospital, but it is really a mess - no offense BCH, but glad we
Working on her lego fire truck!
don't judge a book by its cover.  You walk in this place, and it just is not the look of a place where you would want to spend a week and have major surgery.  But the internal components (staff, surgeons, docs, nurses are magical!).  Anyway, since all the construction, stuff has gotten shifted around.  I found the new gift shop and took a look. They actually had a decent legos selection, and Sarah loves legos.  So I got her a lego fire truck, and brought it up to her.  That made her day - so she spent the next hour or so building that, which was great to pass some time.

By 5pm, she was tired and in a bit of pain again.  She was going to try to stay awake until 8pm to get back on a regular sleep schedule.  This plan did not work, shortly before 6pm she was out.  Was not feeling great, bit more pain, and was tired, so we let her go.  Unfortunately, by 8pm she was wide awake and in a bit of pain.  She we got her pills and tried to wind down for sleep - I was exhausted.  Judi left for the hotel to get her sleep and we closed down for the night.  What a view from our windows at night...
Sarah watching a movie and a view of the city.

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